lonely snowy coast of wavy ocean

Resources: website links

This part of the site is, or will become, a place filled with links to resources I find useful. Its organisation and layout will, doubtless, change as it grows and I discover what works. The fact that a link or other resource is here is no guarantee of its usefulness, accuracy, completeness or even honesty, but I will have at least looked at every link and think that it is dependable.

internal resources

There are many graphics and drawings on the site (maybe a Unique Selling Point!), and they are all freely available for download and reproduction or use in any way. The only provisos are that, if used, the source should be acknowledged, and they cannot be sold on to others.

There is an Excel spreadsheet with them listed, which is updated from time to time. You can download it from here.

medical training (UK)

Rehabilitation training is a medical speciality, though trainees can enter from any speciality. The most important website is the
Joint Royal College of Physicians Training Board (JRCPTB) website. The website covers more-or-less everything, but requires some practice to find everything quickly. The curriculum is here.

Other sites with information relevant to training include the General Medical Council (here) and the Academy of Royal Medical Colleges (here.)

The British Society of Rehabilitation Medicine is the speciality society, and people interested in training can also contact the BSRM to be put in touch with someone locally who can discuss the speciality with you.

Websites – professional

This part covers resources that will largely be of interest to rehabilitation clinicians, of any profession. The ‘resource’ is other websites.

Clinical Rehabilitation (journal) ‘collections.
The journal has three collections of articles published since the first issue, concerning (a) Rehabilitation in Practice, educational material and/or descriptions of interventions; (b) goal setting, and (c) Rehabilitation in Theory, educational material and/or discussions about various theoretical, philosophical, or conceptual aspects of rehabilitation. Available here.

Shirley Ryan Measures Database.
A database of over 500 measures. Further background evidence and informations given about each measure. Currently divided into ten clinical ares:  Stroke, Spinal Cord Injury, Brain Injury, Parkinson’s Disease, Neuromuscular Conditions, Vestibular Disorders, Older Adults and Geriatric Care, Cancer, Musculoskeletal Conditions and Arthritis. Available here.

King’s College London Rehabilitation Outcome Measures.
This database has about 20 measures, about half of which are used within the national UK Rehabilitation Outcomes Collaborative (UKROC) database and are collected nationally from registered services. Some others come from work at Northwick Park Hospital. It includes the FIM/FAM as used in the UK. Available here.

Cosmin database of systematic reviews of outcome measures.
This is a database of quality-assessed systematic reviews of any outcome instrument, not only rehabilitation measures. Should be useful especially when there are several or many potential measures. Available here.

Developmental and Child Neurology (journal) Virtual Issues.
Collections of articles from the journal about specified topics (over 20), many of which concern rehabilitation matters such as hippotherapy (horse riding to you and me), and selective dorsal rhizotomy. Few randomised trial unfortunately. Available here.

Cochrane Rehabilitation.
A section of the Cochrane Collaboration devoted to rehabilitation. Nearly 10% of all Cochrane systematic reviews are relevant to rehabilitation. (here) That about to about 900 at present (Early 2021). Also has news items and details about specific rehabilitation projects relevant to evidence, such as developing a check-list of randomised trials in rehabilitation. (here) Home page available here.

JAMA Pschiatry – Humanities.
This website has a collection of pictures (artistic, not photographic) coupled to essays “exploring the role of the visual arts in representing truths about mental health, coping with illness, trauma and conflict, addressing social stigma, and enriching society’s understanding of mental illness.” They could keep you interested for years, and represent an invaluable source of inspiration and understanding. Start here, and explore.

Websites – patient & professional

This part is mainly patient-related but many will also be of interest to professionals.

#RehabLegend (twitter handle)
This website initiated by Kate Tantam, an intensive care specialist sister at the University Hospitals NHS Trust, Plymout, UK has as its strap-line: “A  #RehabLegend  – Anyone who has done anything to enhance, support or facilitate rehabilitation” Visit it here.

It has many pages. One than is of particular interest is here, and it is patient stories. There are other sections including rehabilitation resources.

Rare diseases
There are more people in total with rare disease than there are with many common diseases. Often a patient organisation will cover its own rare disease well, and should always be looked for (Googled). One useful repository is the National Organisation for Rare Diseases (NORD) – see here. Also can try Mayo Clinic here.

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